Essential Guide to LGBT Caregiving: Challenges, Steps & Resources

LGBTQ Community Caregiving Guide

Caregiving is a journey that comes with universal challenges, but for those supporting LGBTQ older adults, the path often involves unique obstacles that can make the process more complex. From navigating legal systems without recognized kinship to finding culturally competent healthcare, the caregivers of our lesbian, gay, bisexual, transgender, and queer elders face distinct pressures. Recognizing this need, organizations like AARP and SAGE (Services & Advocacy for GLBT Elders) developed a vital resource: the LGBT Caregiving Guide. We’ve broken down this essential planning guide, outlining the specific challenges this community faces and the five crucial steps you can take—whether you are a family member or a devoted “family of choice”—to ensure compassionate, legally sound, and comprehensive support for the older adult in your life.

LGBT Caregiving Guide: A Planning Guide for Caregivers in the LGBTQ Community from AARP and SAGE, is a practical tool for caregivers of LGBTQ older adults.The guide outlines five key steps to navigate the caregiving journey and highlights the particular challenges faced by this community.Key Challenges Highlighted:

  • Non-traditional Support: LGBTQ older adults are less likely to have traditional caregiver support (spouse/children) and often rely on “families of choice” (close friends, ex-partners), whose relationships may not be legally or socially recognized, making access to services difficult.
  • Isolation and Distrust: Due to a history of discrimination and stigma, many LGBTQ older adults are fearful or distrustful of medical and social service providers, leading to isolation. Many also prefer to keep their sexual orientation or gender identity secret, especially in long-term care settings.
  • Access to Services: LGBTQ older adults access services and benefits like senior centers and meal programs at a significantly lower rate than their non-LGBTQ peers.

The Five Key Steps for the Caregiving Journey:

  1. Start a Conversation: Discuss values, preferences, wishes for healthcare, and finances before a crisis occurs.
  2. Make a Plan: Put together a caregiving plan for a quicker and more effective response. This includes getting necessary legal documents in place, especially if the caregiver is not a legal spouse or next of kin.
  3. Form a Team: Recruit others for help, including friends, family members, community groups, and professional service providers.
  4. Find Support: Utilize organizations and professionals with experience in helping family caregivers.
  5. Care for Yourself: Prioritize self-care to maintain energy and health, and educate yourself about the aging process and navigating the healthcare system.

The guide also includes a glossary, resources, checklists, and sample caregiving plans.

Disclaimer

This information is based on the AARP and SAGE LGBT Caregiving Guide: A Planning Guide for Caregivers in the LGBTQ Community and is intended for informational purposes only. It is not a substitute for professional legal, medical, or financial advice. Consult with relevant professionals for personalized guidance.

Source

AARP and SAGE (Services & Advocacy for GLBT Elders): LGBT Caregiving Guide: A Planning Guide for Caregivers in the LGBTQ Community

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